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KJPXXX

4 feet slip'en and slid'en across the Vine
Articles Posted: 24  Links Seeded: 1
Member Since: 3/2009  Last Seen: 1/27/2012

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Wed Sep 8, 2010 7:20 PM EDT
health, life, depression, pain, fibromyalgia
By kjpxxx
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.This has been a very bad year. As I sat at my computer thinking and reading the thoughts of others, I realized how much I really didn't give a rats ass about anything. Wow, it really hit me hard. I had some emotional issues in my 20's and took my delivered dose of Med's and therapy. Actually took Paxil for so many years , until one day I thought screw it. If I am going to be a nut job, so be it. I have to say I did not totally run amok....some of you out there might disagree....lolrotf. BUT I did manage to find a common ground in life where I realized @!$%# happens and no one promised me a rose garden.

I finally became OK with my core values and decided to just let the flack fall where it may. I was way to old to be held hostage by my own indecision's about who and what I was AND MAYBE ,WHAT I WAS, REALLY ABOUT, was OK. So I sort that out and I still feel like crap. Then I remember my old long time friend , Fibromyalgia. I have had it so many years it seems like I forgot I had it. Life was just a world of one kind of pain,or another. I thought that just was what being alive meant. I have Ostio-Arthritis so bad my hands look like a Bonsai Tree. I drop every other thing I grab and it seems life is a succession of bending my corpulent self over, every other time I grab something , as it falls right through my grasp.The Arthur is so bad, made the Fibro float away so far, the grey cells forgot to remember my old friend.

It hit me last spring that my neighbor across the street...my age, seemed to always be bragging about still climbing a ladder to clean her gutters...she is like a Gad-fly. She flits here and there and preens her slim,nimble body like a Peacock....{male,that is] Me I hobble here and I hobble there, I am jealous. That bothers me also. See I am one of the old hold outs that believes in GOD. It took allot of meditation to not be really, really, pissed at Him. It has seemed He has heaped and inordinately large amount of "CRAP" on my plate. Then I see the Gad-Fly and boy that can do it for me....bummmerrrrrrrrrrrr. If I see her up on the roof I have to restrain my self from wishing she'd fall off. One day she did, fall off the ladder into a gopher hole....Well that did it...Now I have to listen to how much pain she is in because she "strained a muscle" in her back. So I made a deal with God..... I'll never wish for her to fall off the roof,if He just shuts her up! OK , I got side tracked.

Fibromyalgia....well in 1970,when I was diagnosed...possibly Lupus at the university of Oregon Medical School, I sort of did the Ostrich thing and thought if I was going to live a long and full life I had to "FORGET ABOUT IT". I soon found there was no-one remotely interested in the fact that I had A LITTLE PAIN. Where? every where, "Yah,right" they'd say. I even had a doctor once actually say to me,when I listed it as a presenting condition...."You mean, there really IS a real medical condition called,Fibro....what"? I thought it was just a bunch of whiners!!!!! I resisted kicking him in his crotch and asking him to whine for me.

So my fellow Fibromyalgia sufferers....that is a word right? It does not get any better. It does not go away. In fact it is worse. It makes me depressed even on a good day,when my brain says,"Hi World,lets dance"....It is a sneaky,@!$%#ty,not fair illness and so every day NOW....I take the pain meds..."how addicted can a 70 yr old woman get and who cares anywayJust give me the drugs and let me live a quasi normal life,even if it is not on a ladder...( I offered to take her up on her offer to clean my gutters) me bad! I even ordered up my "medical Tobacco" card as my grandson calls it....There have to be some perks to off set the down side, right?

Did I have a point when I started? I do not know. Maybe you all do not care.... It could be the pain meds,

all-time-ers/old-time-ers, dementia, or just plain OLD....but who gives a rip anyway....Have a good one, one and all.

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  • Public Discussion (44)
kjpxxx

Yah,I am back to talk about myself...some of you missed me and I can count you on my right hand and to you all..........may you always be blessed.

  • 9 votes
Reply#1 - Wed Sep 8, 2010 7:12 PM EDT
Jerseygirl1978

kjpxxx: I just read your article and laughed out loud and felt sad at the same time. I laughed because you have a great sense of humor and dry wit, which I love. I felt sad because I feel your pain (unfortunately) and I can tell Fibro is only going to get worse, because in the 4+ short years I've had it, it's been a downward spiral and more and more problems/conditions are popping up and I feel like I am literally disintegrating. So, from one Fibro gal to another, you are not alone and if you need me, I'm here for you. Thank you very much for sharing your story on Fibromyalgia friends and thanks for joining, too. Sorry that you are a member of the Fibro club, as it's not a fun club to be in, but I'm happy to have you in the group! God bless you and take care of yourself... :)

  • 4 votes
#1.1 - Thu Sep 9, 2010 1:30 AM EDT
kjpxxx

# 1.0 I was wrong 2 hands.....lolrotf............Karen

  • 3 votes
#1.2 - Sat Oct 16, 2010 3:39 PM EDT
Reply
rottlady

I wondered where you had gone off to. I'm glad to see you back posting! I don't know much about Fibromyalgia, only what I have read here on the vine from other sufferers. It really must be awful to have to talk with so called professionals that don't even recognize it as real.

I believe there are some groups here now with Fibromyalgia as a subject matter, you should try searching the groups page...

Again, I'm glad to see you posting, hang in there and please don't go trying to climb any ladders! *smiles*

  • 7 votes
Reply#2 - Wed Sep 8, 2010 7:50 PM EDT
kjpxxx

Howdy Rottie......I had to take a break....the Vine is not for the weak.LOL Also writing comes to me in spurts....if I was a real writer I'd live in a cold ghetto Attic , with little food [ God, that might be a blessing]...I feel the spirit over taking me again and I am making my 100th promise to stay away from the Political side......Yah right...!I am making a move to Joseph Or. and that has jazzed me....a new life...I live in the town where the wacko tossed the acid in the "pretty girls" face.....so it is time to make some life changes......good to hear from you....I wish I could put my articles back on,but in reflection,that was yesterdays news and I need to lean to "let go".....have a good one.....kp

  • 9 votes
#2.1 - Wed Sep 8, 2010 8:05 PM EDT
rottlady

Cool news on the move, but it also sounds like a lot of work to me. I hate moving...

Yes, staying away from politics sounds like a good plan to me. Good luck with that!

  • 7 votes
#2.2 - Wed Sep 8, 2010 8:23 PM EDT
Reply
Harry Weidermier

kjp.... For a moment you almost had me believing this was about the pains associated with growing old, in particular that phantom fibro-bugger that seems to randomly pick its victims. But that isn't the story here. Far from it.

In your picture I see a beautiful grandmother cherishing life with a beautiful grandson. In your written words I see a beautifully written piece created by fingers on a keyboard that boldly defies Arthur. In your wit I see a beautiful mind, ever so clear and coherent, relaying just one story out of a multitude you hold so very dear (a story that only God himself knows its entirety.) I see a neighbor that reminds me of my own grandmother (sorry :) ) who cleaned her own gutters well into her 80's. She will turn 98 this November. I also see the beauty in aging (pain be damned!) because at the end of our own reality, Fibro, Arthur, Ostro, their nasty friends, and even the occasional Gad-fly, cannot rob anyone of a well lived life.

  • 9 votes
Reply#3 - Wed Sep 8, 2010 8:30 PM EDT
kjpxxx

I want to thank you for those kindest of words....made a tear come to my eyes....you are right,it is all in how we look at the day, our life, our path....no matter what is our path, chosen or not.I learned to live in the moment as much as I can..that was a tough one.....God has truly blessed me in many way, if I take the moment to just reflect....I do often and I remember to thank Him for the gifts.....kj.

  • 5 votes
#3.1 - Wed Sep 8, 2010 10:52 PM EDT
Jerseygirl1978

Harry W: What a lovely comment you posted. It's nice to see humanity and compassion at its finest... :)

  • 3 votes
#3.2 - Thu Sep 9, 2010 1:34 AM EDT
Harry Weidermier

Thank you for your kind words. I am taking away a huge pearl of wisdom here: To avoid as much vine political commentary as humanly possible. I've tried it before in short periods of time, and I can tell you there is a happiness/misery index at play;

- Decreased Politics = Increased Happiness

- Increased Politics = Increased Misery!

So I'm joining kjp's 100th pledge! Thank you for that.

  • 3 votes
#3.3 - Thu Sep 9, 2010 10:48 AM EDT
kjpxxx

Holy crap I wasn't back one day and I found out the trolls managed to get my courtesy leaf taken away from me.......I do not even have to go looking for the trouble....they follow me around like flies seeking out my honey......so be it...I must really stick in their craw to take such delight harassing a sweet little old granny like me......HEE HA its great to be back......keep up the faith,you'll need it my friend.

  • 5 votes
#3.4 - Thu Sep 9, 2010 3:35 PM EDT
Reply
mstanley2265

Hi, I was a newbie, the Vine saved me in a way lol...anyway, stopped by because once I was diagnosed with Fibro. Nothing was working, I know the pain and the disabling of it. I can still remember the days when just getting out of bed was a pain (pun intended) and I was a young 41. lol

Then I was exposed to RSV by a granddaughter. That like to killed me but after about 8 months, I got better. The thing was that not one of the Dr's could explain why after that the Firbo was gone. Poof, like magic.

I do not recommend the Respiratory Stress Virus for a cure. I acutally told one doctor I was going to write my obit plus a letter to the editor and advise people that Doctor's had no clue how to treat RSV or how to at least lower the impact of the virus ..I mean really a 104 fever and they weren't surprised just failed to advise, as usual. So, I finally got some good meds, and relief and gradually got better. My sense of smell and taste took awhile longer though lol It also seems that one episode makes you more likely to have a few more, not quite as bad but still an annoyance.

of course it could have been something in the virus or the virus itself that attacked the fibromyalgia, I talked to a microbiologist and he thought that was a possibility too. Also, the fever or the meds or a combination of all three. He wasn't helpful. lol but he was a good microbiologist very good.

Whatever, the one thing is to keep on keeping on and with friends on the Vine well you kinda have too. Good times are rolling...keep smiling the world does smile back on occasion

  • 3 votes
Reply#4 - Wed Sep 8, 2010 9:11 PM EDT
Jerseygirl1978

mstanley2265: You are the second person who I have come across, who got a virus and somehow their Fibromyalgia went away. I find that very interesting... Thanks for sharing that. Glad you got better!

  • 3 votes
#4.1 - Thu Sep 9, 2010 1:39 AM EDT
kjpxxx

yes I find that interesting also...I will file it away and ask my Rhuematologist....

  • 4 votes
#4.2 - Thu Sep 9, 2010 3:37 PM EDT
Reply
Heckofawoman

My dear "K"......thank you for writing your story. It's great to see you here, and you do have people that care, and want to hear from me, most espeicially "me". I think you are one HECK of a lady....and I am always grateful see you when I can...your corrspondance with me, has been heartfelt, and well.......you are someone I would aim to be more like. I hope you will continue to peek in, STAY OFF the political threads, write when you can, and I wish I could wish away your pain. I will do as I have always done, and that is to cross my fingers, till there blue, and when I'm done, your pain should be a bit better, this I pray:) With love, your friend Trish

  • 3 votes
Reply#5 - Wed Sep 8, 2010 9:32 PM EDT
kjpxxx

Everything you say is so very true. I find if I do not dwell on the pain....it fades to the back of my mind....One day I had a stiff neck for about 3 months, so I went to my Rhumatologist for a cortisone shot,which she gave me. WELL let me tell you, I yippy-skippyed all week long .I had a appointment with my Primary for a check up and she mentioned how well I looked ,rested etc...... I remembered that Maxi shot and told her the pain was gone for the week and I was remembering how it felt not to have my old buddy Fibro and arthur as traveling companions for the week ....she looked amazed. Even doctors forget what chronic pain does for the over all well being that is expressed in the face when the pain is relieved for a day or two.....it could be much worse...I have friends with truly death holding their hands....I am very greatful for what I do have....

  • 5 votes
#5.1 - Wed Sep 8, 2010 11:34 PM EDT
Reply
ricksuth

"Yah,right" they'd say.

It is amazing, Doctors have told my wife when she will all of a sudden become paralyzed, I mean can't move from head to toe, can't talk, I mean nothing. You can be talking to her and unless you can recognize it when it occurs, you would think she was just staring off into space. This can last for about two or three minutes and then she is breathing again. Been to many Doctors and millions of tests. Nothing is wrong. After years of frustration she finally told me that when she dies for no apparent reason she wants "I told you so" put on her head stone.

  • 4 votes
Reply#6 - Wed Sep 8, 2010 10:17 PM EDT
cajunsnake

Lady K

You gave the wife a good laugh...she's got the Fibro....what you got. You brightened her day. Now an important question. Do you share meds? lol

  • 3 votes
Reply#7 - Wed Sep 8, 2010 10:17 PM EDT
kjpxxx

over the years you get, you share and you are friends for life....good friends make life richer and worth living...God speed.....

  • 4 votes
#7.1 - Wed Sep 8, 2010 11:38 PM EDT
Reply
mrsrachelm

I have Fibromyalgia too. I understand your article first hand.

There is a new medication for those who suffer with Fibromyalgia. I can't take it due to other conditions and how it would aggravate them but maybe it would help you.

People who don't have constant pain don't seem to understand how horribly it can wear a person down both emotionally and with physical exhaustion. I have chronic fatigue sydrome thrown in with it too like many fibromyalgia suffers do. It's just unrelenting. It hinders every aspect of your physical life. Even sex can be damned painful because of the physical exertion involved. Nothing can kill the mood or even desire for sex like knowing you're going to be crying like a baby and wracked with a higher level of pain than before for a day afterwards.

I don't have osteoarthritis (yet) but I do have advanced osteoporosis in my hips and legs due to being paraplegic. Most people don't know that osteoporosis is actually painful in addition to being dangerous. In fact I've been bedridden for two months now after having broken my hip and knee all at the same time. When you have osteoporosis, the doctors can't pin the bones like they normally would because the bones would just disintegrate under them so they have to heal the old fashioned way and the leg is never the same afterwards. Luckily, being in a wheelchair makes that not as big a deal for me, LOL.

Hang in there! The only thing you can really do is take it one day at a time...sometimes even just one hour at a time. My thoughts and prayers go with you.

  • 3 votes
Reply#8 - Wed Sep 8, 2010 10:24 PM EDT
kjpxxx

Doctors have very little knowledge about Fibro....I thought when HIV and "auto IMMUNE Disorder/ Arthritis[rheumatoid.ostio=auto-immune] became a big issue there would be more work into Fibro..

Fibromyalgia, Lupus ,sjogrens, Rheumatoid/Ostio arthritis.....are all liked together in the Rheumatoid family...one cannot have lupus without having the RA factor in their blood...One cannot get a creditable diagnosis for Fibromyalgia{Lupus} without a liver biopsy...they do a umbrella diagnosis for Lupus with having 7 to 9 lesser illnesses like Fibromyalgia etc.to pin point the disease origin....they are all inter woven ...it is a genetic or possibly disease [like ckicken pox,small pox,etc] mutation from those virus...

  • 4 votes
#8.1 - Wed Sep 8, 2010 11:50 PM EDT
mrsrachelm

Liver biopsies suck. PAINFUL!

  • 3 votes
#8.2 - Thu Sep 9, 2010 12:10 AM EDT
kjpxxx

I figured I did not need the biopsy to tell me I had pain.

  • 4 votes
#8.3 - Thu Sep 9, 2010 3:39 PM EDT
Reply
frostyone

Hey kjpxxx glad to see ya slippin around on the Vine again :)

  • 5 votes
Reply#9 - Thu Sep 9, 2010 4:06 PM EDT
kjpxxx

I wasn't back a half a day until the crappolla starts....you know that "stuff" I am always slippen and sliden in,,,,on the Vine..I am special Frosty.so discourteous a person am I ,that they took my courtesy leaf....really bummed me out and made me remember why I sat out the last 3 months and let my ulcer heal.....

but I see you are still sticken, like the perma-frost!......good talken to you .

  • 5 votes
#9.1 - Thu Sep 9, 2010 6:06 PM EDT
frostyone

yeah I'm like a bad rash I guess..lol

as for the crapolla...oh yeah it's been getting real bad lately sadly so I've be limiting where I go and such. Great seeing you, and talking to you again :-)

  • 4 votes
#9.2 - Thu Sep 9, 2010 7:41 PM EDT
kjpxxx

I am going to really try and keep my nose in the flower and books posts and some of the great posts of my friends.....with 2012 coming up the level of dementia will be ratchet- up until the flames shoot out their backsides.....hopefully I have been flamed for the last time and can laugh and enjoy some of the good reads I find in the Vines, if one just pushes the thorns aside.....good luck to you also.....good talken to you.....X's & O's....kj

  • 6 votes
#9.3 - Fri Sep 10, 2010 12:08 PM EDT
Reply
mstanley2265

Check out our Poetry Group, we have some good poets and thoughtful ones too....prose and pose lol The World Seen Through Poetry... Peter has a How To Group also....we started several because the admins on the other groups went AWOL lol .

  • 3 votes
Reply#10 - Fri Sep 10, 2010 5:55 PM EDT
kjpxxx

thanks I'll check that out.....I have some gruesome doctoring to do tomorrow so I'll be in the bathroom for the rest of the night and most of tomorrow,,,after that I can check out the new group......I do not write Poetry [as such] some Haiku....badly I think....it is a way my brain works sometimes and it sounds ok to me....to others,well?????

  • 4 votes
#10.1 - Sun Sep 12, 2010 10:55 PM EDT
Reply
One Miscreant

I'm coming late to this party, but thanks for sharing your story. I was reading part 3 of your series and went to your page, where I found this gem. I'll be going to parts 1 & 2 soon.

I know this sounds horrible, but is nice to read about others in pain and not being helped by the genius medical community. I have nothing but contempt for doctors, myself. Misery does love company.

I can't top the kind words that have already be written, but I totally agree with them.

  • 3 votes
Reply#11 - Fri Oct 15, 2010 11:29 PM EDT
kjpxxx

Me Bad....I have not looked at this little pearl in a week or so, so thank you for the stop by....Yes,LOL, I had a colonoscopy....that was real fun!!! I keep repeating what my friends old mom used to say..at 99 yrs of age,lived to 101 and 1/2..."stay away from them doctors,they can kill ya"......and she meant every word!

I hope you enjoy my Banjoe story...I still miss him a lot..mules are a GREAT investment..in emotion and in time....thanks again,Karen

  • 4 votes
#11.1 - Sat Oct 16, 2010 3:13 PM EDT
One Miscreant

Your reply didn't come through on the tracker, sorry about that.

I think the advice of someone who lives that long is worthy of serious consideration. They'll kill ya and not know they did, IMO. One of my problems seems to originate in a combination of meds. They only know each one by themselves, so they could/would never speculate or consider two together. Medicine just doesn't work that way. That would implicate a colleague or worse, big pharma. I just want the side effects, muscle pain etc., to stop. I don't really care who did it and they don't wake up with it.

I'll catch the rest of Banjo this afternoon.

  • 3 votes
#11.2 - Sat Oct 16, 2010 5:00 PM EDT
kjpxxx

well you will wait a long time for the muscle pain to go away...in my case it has been almost 40 years and it is still there and gets worse.....that is why I try and ignore it as much as possible. I take down time and find hobbies I can do that does not exacerbate the flare up...it does go into a remission of sorts and I have had relatively good months, but then back it comes...I have my own theory, one that deals with food fed at babyhood and maybe breast fed or not...it seems the body does bring in antibodies to fight non human milk fed to us at the time of birth and may set up the antibodies that attack us later in life...food allergies are at the top of my list as contenders...

  • 4 votes
#11.3 - Sun Oct 17, 2010 4:48 AM EDT
Reply
mtherof3

((((((((((kjpxx)))))))))

  • 2 votes
Reply#12 - Sat Oct 16, 2010 3:29 PM EDT
kjpxxx

{{{{{mtherof3}}}}] thank-you! Karen

  • 4 votes
Reply#13 - Sat Oct 16, 2010 3:37 PM EDT
dmlane

kjp ~ From what I see above, there are many who love and care about you ~

Keep kicking, 'onery becomes you...

  • 2 votes
Reply#14 - Sat Oct 16, 2010 3:52 PM EDT
kjpxxx

dmlane...yes I have and that makes me very humble and I hope I am a friend to them also. thanks for stopping by...Karen

  • 3 votes
#14.1 - Sun Oct 17, 2010 4:55 AM EDT
frostyone

well I can't speak for the rest but you've always been a great friend to me Karen :)

  • 4 votes
#14.2 - Sun Oct 17, 2010 3:00 PM EDT
kjpxxx

(((((Frosty))))))

  • 3 votes
#14.3 - Sun Oct 17, 2010 10:39 PM EDT
Reply
CL1

kjpxxx -- I'm sorry I haven't been as much of a presence on your column as I originally intended. In fact, there are several that I feel that way about. How are we supposed to get to everyone when time is limited, ya know?

I'm sorry to read about your health issues, and I do wish I had a magic wand; I would wave it over you right now. Life can kick all of us one way or another - eh? ..And we kick back. If we know in our hearts that we are doing the best we can, then we just go with the flow... If you can change something for the better, then do it. If you can't, manage it the best you can and seek pleasant distractions and work-arounds. I imagine you don't need to read me saying that - it's just offered in support, nothing more. Take Care.

  • 2 votes
Reply#15 - Sat Oct 16, 2010 7:51 PM EDT
kjpxxx

I understand CL1..I just was following the lets gripe about this illness ,that is really a pain in the a--...........sometimes we need to let it out and whine so we make sure people understand why we are cranky on certain days.....thanks for stopping by anyway....Karen

  • 3 votes
Reply#16 - Sun Oct 17, 2010 4:53 AM EDT
CL1

Hi - I hope you didn't misunderstand me and think I was knocking you for discussing your health? ..No way would I ever be doing that. Whining is how we tell those we care about how we are feeling, and, as you said, it lets them know why we say and do things. ..I was just offering my support in dealing with life's personal difficulties - stating things we all know - but are sometimes good to hear again.

..The written word is easily misinterpreted, and I hope that isn't what happened. My words are sincere.. and I still wish I had that magic wand, and could make it all go away; no one that hasn't caused harm for others deserves to suffer. (please except my apology if my words were taken as 'bluntness' instead of sincerity, as intended)

This is something I have the learned on the Vine - It's best to not assume 'positive or negative' contributions from others. It's soooo easy to read into statements when there was nothing esoteric intended, often leading to potential anger, frustration or hurt feelings. When in doubt, ..ask if that is what someone meant. ...I am so glad you replied and indicated that you perceived me as being blunt, for lack of a better word ..I am really sorry, and Thank you for letting me know.

  • 2 votes
#16.1 - Sun Oct 17, 2010 1:24 PM EDT
kjpxxx

Oh I understood you and knew you were not bad mouthing me....this darn computer is a flat medium and sometimes I fail to remember that when I write...I try and explain myself, but no I did not think you were Knocking me...... Thank you for considering me though...it shows you are a thoughtful person.......Karen

  • 3 votes
#16.2 - Sun Oct 17, 2010 10:44 PM EDT
CL1

Oh, I'm so glad to read that! ..Guess I'm the one that read 'you' wrong! lol.

You are so right that the flat medium can easily be misinterpreted. Time and again, after the edit has timed-out, I wished I had explained further to make sure I closed any holes or reworded anything that left too much room for interpretation.

What is frustrating about that to me is that I have been making a strong effort to keep my posts short and concise, like I used to, but now feel that more explanation is often necessary; yet, maybe it isn't. It seems that more words get me into trouble! lol.

Thanks again for clarifying. It's really appreciated! ..CL

  • 1 vote
#16.3 - Sun Oct 17, 2010 10:53 PM EDT
Reply
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